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alanfm78:

sickinlove:

I made this video just a few minutes ago to help explain the process of giving yourself an interferon injection. I did the prep and injection part in under approximately 3 minutes, while talking through it. This is only the third injection I’ve taken and the FIRST ONE that I’ve done myself.

I have been diagnosed with MS since the summer of 2007. I first noticed paralysis in my right side during an endurance race when I used to drive race cars pro-am. It spiraled from there into what doctors think was my second major relapse. The first was when I lived in Mexico about 2 years prior and went misdiagnosed as a brain infection.

I have then suffered about 5-6 relapses a year lasting around 3-6 weeks each time. They ranged from partial paralysis to blurry vision to electric shock feelings when I moved my head, as well as a constant pins and needles sensation in my skin. The symptoms in each relapse don’t tend to go away with my type of MS. They just keep hopping on the pile though sometimes they lighten up.

I have been in a state of denial until recently when I lost my vision for 2 months. I had gone from a fully independent woman to needing someone to help me do household chores, drive places, pick my daughter up from the bus stop and all sorts of things one would think a 29 year old should be able to do.

As I say in the video, my doctor said by this time next year I will be severely handicapped at the rate I’m going. After some time waiting I was finally sent my prescriptions and again it sat around in the house for a couple weeks before I mustered up the courage to ask my husband to do the injections. We watched the DVD that came with my kit. We both heckled and mocked the people in the videos because they don’t seem real. They didn’t have a sense of fear or worry or dread, which is why they just didn’t seem real to me. They’re probably very experienced with the treatment, but I’m not.

I decided to make this clip, hoping that maybe someone who was recently diagnosed would see it and it would help them to start their treatment immediately instead of being like me and allowing more and more lesions to form across their brain and spinal cord.

I don’t want to go blind. I don’t want to be in a wheel chair. I don’t want to lose my independence. I don’t want that for you either and I hope that this helps in some way.

If you have any questions, please feel free to contact me.

My ex, Rachel…one of the strongest, bravest people I’ve had the honor of knowing. Glad you’re in my life, always. You define grace and will, R. Love you. Please reblog to help get Rachel’s message out to the people who will benefit from her experience.

5 months ago

September 28, 2009
reblogged via writer-a

35 notes

  1. liabolicious reblogged this from nolagrrlnyc
  2. lawful reblogged this from tanya77 and added:
    What a great idea.
  3. ericmortensen reblogged this from writer-a
  4. constantwanderlust reblogged this from thewordunheard and added:
    I can’t imagine how hard (and scary) illnesses like these must be. Just a quick note to readers who know people with MS,...
  5. thewordunheard reblogged this from itsallinmyhead and added:
    This is really, really important to me. Last October, after a sudden onslaught of symptoms including nerve death and...
  6. misterhippity reblogged this from sickinlove and added:
    great video that’ll hopefully do...wonderful woman,...always...
  7. jeffcagle reblogged this from writer-a and added:
    Stay strong, Rachel. This is a great video to put out there for people. My mom also has MS, and has to inject herself...
  8. tanya77 reblogged this from writer-a and added:
    Rachel, I can’t imagine what this is like for you, but we’re rooting for you over that asshole, MS. Hey Tumblrs, what...
  9. writer-a reblogged this from sickinlove and added:
    My ex, Rachel…one...strongest, bravest people...knowing....
  10. writer-a reblogged this from sickinlove and added:
    My ex, Rachel…one...strongest, bravest people...knowing....
  11. sickinlove posted this

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